becker muscular dystrophy support group cardiomyopathy support
neuromuscular CK estimatuin
The UK based support group for people with
Becker Muscular Dystrophy, their Families and Carers
We aim to provide a means to talk to each other to share ideas, experiences and break the isolation that we can all feel. We have members in both the UK and USA but we welcome members from any part of the world, we provide information and relevant to the USA as well as the UK to cater for all our members .
· Members Contact details
This is the most important part of the website where we list our members by the area they live in which enables members to contact other members in their Area. We now have 65 members listed including 14 families with access to over 100 extra contacts in the USA & Canada & Links to find more world wide
· Stories of Living with Becker
A section where members can share experiences they have faced in life and show how they have come through them. We give hope to people who do not know what the future holds; our experiences can help others facing the same or similar problems.
· Information & News
Information regarding Becker MD including: CK Estimation, In-frame, Out-of-frame, Medical Issues, Access to work, Steroids etc. , we are in the process of developing a holidays page with information, links and help in finding suitable accommodation etc. when planning holidays.
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