Pillars of strength

Alicia Ben Hamou introduces the work of the Duchenne Family Support Group.

Alicia has a son with Duchenne Muscluar dystrophy and has been actively been involved with the group for nine years *

From the Winter 2001 edition of Target MD

For more information on the DFSG please visit their webpage  www.dfsg.org.uk

If you wish to subscribe to Target MD please contact them by Email  at targetmd@muscular-dystrophy.org

The Duchenne  Family Support Group arose out of a need identified by Families attending a London Muscle clinic to share information. Twelve interested families and an NMC Family Care Officer established a committee to setup a support group. The first Annual General Meeting was held in 1988 and the group boasts a membership of 500 Families and 350 Associates  across the UK, it also provides information to families abroad.

Our Vision is that all children with Duchenne muscular dystrophy will have a quality of life undiminished by the condition and they and their families will have access to support , information and social activities, all of which are offered by the support group. The DFSG publishes information leaflets  aimed at families and doctors ) and a quarterly  newsletter, as well as offering care related workshops in partnership with professionals. Family membership and publications are free.

      We aim to support

• Those who have Duchenne muscular dystrophy
• Families and carers affected by Duchenne muscular dystrophy
• Manifesting carriers of Duchenne muscular dystrophy
• People affected by Becker , a milder form of Duchenne muscular dystrophy
• Professionals and volunteers involved in providing services  relating to all aspects of these conditions.
• Members of the public interested in helping Families affected by these conditions.