Behavioural problems with Becker
My search for
information on the Web
I
was asked by someone if I knew of behavioural problems in regard to children
with BMD.I spent time looking things up on the internet regarding Behavioural problems
with Muscular dystrophy, they tend to be in connection with Duchenne
but Becker is almost identical being really a mild form of Duchenne.
The links where mainly a waste of time looking up so I kept looking and I found
a few things which may be interesting to look up which seem to say there will
be a few cases with Becker without actually mentioning them.
Having
spoken with a couple of contact I have who have a child with Becker who is has
behavioural problems . One it would seem is directly
attributable to BMD the other may not be but on asking my specialist most
probably it may be that these problems are not related to BMD they are a
problem as well as the BMD . .
From
the NHS Direct site
http://www.nhsdirect.nhs.uk/articles/article.aspx?ArticleID=257&PrintPage=1
it
says that with Duchenne muscular dystrophy
complications can include learning difficulties (in about a third of cases).This does not say that third of all
children with MD WHAT IT DOES SAY IS THAT IT IS THE CASE IN A THIRD OF THE
CASES WHO HAVE MD WITH COMPLICATIONS.
From
the MDA in the
Many children are extremely frustrated by their loss of
independence. Signs of this frustration may occur as disruptive behaviour, a
decline in work performance or general apathy. This suggests that children may be
affected emotionally by MD
and they may be expressing their frustration.
My
Brother lives in Pennsylvania and there are a great many Amish in the vicinity,
they live in their own comunitities apart from the
secular world if at all possible.I found this article
about an Amish child with MD who is disruptive in class/
http://pediatrics.aappublications.org/cgi/content/full/114/5/S2/1501
This
may give some insight into possible problems.
There
are a number of children with Becker who are disruptive this can be down to
frustration at having the condition and an emotional inability to cope with
having Becker. Dystrophin is also found in the brain
so it can be the cause of disruptive behaviour. I got depressed at school the
old “its not fair” came out and I got frustrated at
not being able to do things .I did not have problems as a child caused by
Becker in this way I did fall over a lot but no behavioural problems
Try looking at www.mda.org and searching on it they
are the equivalent organization in the
I
found this on their site
NOTICE IT SAYS Mehler speculates so
its just an article he wrote not proven fact but it may help
“It turns out that there are different forms of dystrophin in the brain, and the way it’s arrayed in the brain during development is a thousand times more complicated than the way it is in muscle. That chapter is just beginning to be written,” Mehler says.
And he’s among those writing the chapter. Emotional manifestations are part of the dystrophin deficiency in the brain, Mehler speculates
“ Parents, he finds, are often relieved, rather than distressed, to find that their child’s cognitive or emotional problems are part of his neuromuscular disease and not something separate
To
sum up you can read this information but better than this ask your specialist
about it as they deal in facts. I hope this information is useful,sorry I can’t help any more than this but the more I
look up the more I learn .
Please
let me know of your experiences or further information to add to this site.
Take
Care
Tim