The
UK based BMD Support Group
For people with BMD, their Families
and Carers
Becker Muscular Dystrophy
What is being done to cure it?
What about
families - how to cope
Contact list of others with Becker
Contact list of
families Added new family 18th July 09
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I have created this
petition in order to get help for over 5500 sufferers of Neuromuscular
Conditions living in the East of England
5500 sufferers of neuromuscular conditions. muscular dystrophy. living in the entire east of england region have no access to a regional care advisor. unlike the rest of england and especially the south west where 5 new posts have been created. these advisors are a necessity to people with these conditions to the extent that it could in some cases increase life expectancy by up to 10 years. that is the difference between a duchene sufferer living in the north east surviving until early 30's against someone in the east of england surviving only until early 20's. This is unacceptable and requires immediate government action for the nhs to fund this much needed position.
Roy
They have been successful in the South West, where a review led to over £1 million new investment in specialist neuromuscular services. The West Midlands is currently conducting a similar in-depth review.
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