What help is avalable?
Support
organisations
The Main Charity covering
muscular dystrophy in the UK - Lots of information, Research updates etc
The Muscular Dystrophy Campaign is the only
It has pioneered the search for treatments and cures for over 40 years and
provides practical, medical and emotional support to people affected by the
condition.
Video from Youtube
Together
were stronger - The
Muscular Dystrophy Campaign
This video featuring Sue Barker and
Richard Attenborough is an introduction to the work of the Muscular Dystrophy
Campaign
Click on the video
http://www.actionduchenne.org/
A charity set up by parents and supporters of children with Duchenne and Becker Muscular Dystrophy.
The groups
aims include:
·
to
raise funds for
·
to
educate people in our local communities on the effects and causes of DMD and
BMD
·
to
provide a community website to allow parents and supporters the chance to
organise support in their communities
·
to
educate people in our local communities on the effects and causes of DMD and BMD
A lot of Research
etc is funded by their campaigns and a cure for Duchenne
is a cure for Beckers
------------------------
Parent Project Muscular Dystrophy:
A non-profit
organization devoted to Duchenne Muscular Dystrophy
(DMD) and Becker Muscular Dystrophy (BMD) research
http://www.parentprojectmd.org
Parent Project
MD
PPMD is leading the Duchenne
Muscular Dystrophy community through its commitment to research, education,
advocacy and compassion
Click
on the video
The Muscular Dystrophy Association is a voluntary health agency — a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education. MDA is the world's largest non-governmental sponsor of research seeking the causes of and effective treatments for neuromuscular diseases, sponsoring some 400 research projects annually.
Each year on Labour Day the Jerry Lewis MDA Telethon Raises 10’s of
thousands for the MDA to fund its causes
Click on the Video