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Becker United are here to help families as well as adults with BMD and we try to provide Information, advice and links etc relevant to families. We know that the best help we can give a family of a child newly diagnosed with BMD is to put them in touch with other families who have gone through the same. We have more than 25 Families listed on our Parents/Families list and the numbers are growing.
Goto New main page (Still under construction )
I am now redesigning the site to give it a new look without having to shut down the whole site you may I aim to finish it later this week its to start with the qeuestions and the links become the answers but doing so is more dificult than expected and I need more time.
The UK based BMD Support Group support roup
For people with
BMD, their Families and Carers
We would like to invite you to join with us in helping each other, all of us have something to contribute even if that is just being part of the group.- And did I mention membership is free.
We aim to provide a means to talk to each other to share ideas, experiences and break the isolation that we can all feel. We have members in both the UK and USA but we welcome members from any part of the world, we provide information and relevant to the USA as well as the UK to cater for all our members .
Click here & Download a Becker Leaflet - written by one of our members Steve Davies explaining who we are and what we do ..
Becker United on Facebook
"Facebook is a social networking website that allows people to communicate with their friends and exchange information." -Wikipedia Its the in thing at the moment and I have been able to find time this week (at work so don't tell the boss ) to setup Becker United as a group on Facebook, I will be contacting all the members about this soon but have contacted a few for starters. The good thing about this is that the group page grows as members add their own things to it and I don't need to do much you build it yourselves by joining see http://www.facebook.com/ its Free give it a try!
We are developing a page to help with finding suitable holiday destinations please have a look or if you have any links you would recommend please let us know.
Becker Links
A Website set up for parents, families and friends and everyone who is affected by muscular dystrophy or knows someone with Becker
The site is run by one of Becker United's first family Members Joanne O'Brien and has forums for different topics like the site below. Please be patient it has only just started a few days ago and it it is still in the process of being set up.
In 2007 they changed to become more of a forum enabling members to share information on a great variety of subjects. This is an online space for Becker Muscular Dystrophy patients and carers to share information and experiences. Membership is FREE and allows you to make postings and safely contact other members. (Click Here)
Please register with them they have a different approach than Becker United and it gives the Becker Community a bigger presence on the web .
The Neuromuscular Centre situated in Winsford Cheshire is for everyone within the region directly or indirectly affected by Muscular Dystrophy, there is a full physiotherapy service available by appointment. They have a team of Chartered Physiotherapists who specialise in the management of neuromuscular conditions.
Keeping active is an important part of maintaining muscle strength and the centre is where I attend to receive my Physiotherapy -Tim Click here to go to their Webpage
Good News for 2009
Plans are well underway to open a second Neuromuscular Centre in Newcastle which should open in 2009 . so Watch this space .
Medical related Information
Our information pages offer information that we have found on the internet or has been provided for us or as a result of being asked for by our members. Ok we don't have a vast amount of information but if you any medical or related questions that you would like to find answers for on these pages then please let us know and we will ask the MDC's experts and publish the replies via the information pages to benefit all our members.
One of the groups aims is to encourage our members to share experiences of how they have come to terms with Becker MD in their lives . We feel that encouragement is an important part of the group as we need to help and support each other.
The stories we already share have already given hope to our members we want to encourage you to send in yours also.
Join the MDC E –campaign
Campaigning for change using email and the internet is a fast growing method of getting views across and influencing decision makers. Sign up to be a part of this network
Th > e DMD Registry ( UK )
The DMD Registry is a database that has been launched to help fast track clinical trials and offer families the very latest information on new treatments for Duchenne and Becker Muscular Dystrophy .
The registry is sponsored and controlled by Parent Project UK Limited (PPUK Ltd) a charity set up by parents and supporters of children with DMD and MD http://www.ppuk.org/.
Working Together with other groups
Becker United is working more closely with other condition specific groups. We are only a small group but by working together with other groups we can achieve a lot more. -
the information below was taken from an article in Target MD -Winter 2006
New partnerships for condition-specific groups
We will achieve more if we work together. Combined campaigning ensures a much "louder" voice
Over the past 18 months staff at the Muscular Dystrophy Campaign have met members of the condition specific groups to discuss ways of closer working. As charities who represent those with neuromuscular conditions and their families we have a lot in common and we will achieve more by working together ,combined campaigning ensures a much ”louder” voice. Joint funding applications have already proved successful, resulting in funding for research. Other applications are in the pipeline and Joint Information days and Condition Specific days are well attended and greatly appreciated by the delegates.
For listings of Condition Specific Support Groups and future events, turn to the MDC'S Resources page or log on to www.muscular-dystrophy.org
Target MD , The Adaptations Manual and other publications
Target MD is the magazine of the Muscular Dystrophy Campaign and it is available free to members of the charity and is published four times a year. We have been given permission to reuse articles from Target md so far we have only added a few articles from but they include articles on :-
The Muscular Dystrophy Campaign has also produced an in-depth guide for people who need to have their home adapted, and to help professionals working on home adaptations.
For Details of these and other publications visit our publications page
> Click here for more information.
If you wish to subscribe to Target MD please contact them by Email at
Page revised 06/02/2009
Holidays &Stories
If you Have any holiday stories you would like to share with us please let us kmow we would love to hear them . I have added some of mine but please , please please please send me yours .
Any holiday stories or other items you may wish to add will be found on the Members Items pages. Link to Members Items page
Stories include My USA trip 2006
