Alison's Story

February 8th 2001

It is a year ago today that I had my forth miscarriage. I think that the main thing bothering me is that no one else has remembered. But then, why should they? Unfortunately miscarriages are still quite an undesirable subject to broach with some people, maybe because to them it was an insignificant occurrence or maybe because they too have experienced it and don't want to stir up painful memories. Whatever the reason, this was my BABY, my little boy or girl who should now be five months old and in my arms, who should have been with me this morning as I walked around Tesco's, where people could look at me and see that I'm a mother. Instead, when people see my partner and I walking hand in hand and they ask us if we have any children, I say no. I really want to say yes and tell them about everything that I've been through, but I guess I'm protecting them from an uncomfortable situation, or even myself from the potential verbal bullets that they may fire back at me like, "There was probably something wrong with it", "Are you sure that you didn't overdo it?", or my all time favourite, "It's probably for the best".

I've had four miscarriages and they've all been quite different. My first pregnancy started in June 1998. At the time I divided my time between London and Grimsby, working in London during the week and driving up to Grimsby at the weekends to see my partner. I had already handed my notice in at work and would be moving to Grimsby for good in mid July. But before I did that I had a week in Corfu and two leaving do's to attend. The fact that when I finally arrived here my period was late didn't really register anything with me, I just got on with settling down in my new home.

Two weeks after I moved here it occurred to me that I might as well get a pregnancy test from the chemist although I wasn't experiencing any symptoms of what I imagined pregnancy would feel like. You can't imagine my shock when I later did the test and it came up positive. I didn't want a baby! I'd only just started a new life and a screaming kid wasn't part of the plan. I discussed it with my partner and we were both reasonably indifferent to it. The next day I went to register myself with a new GP and got a pregnancy test at the same time. The result would be in on the 6th August. That morning I woke up with a bit of cramp and went to the toilet only to discover that I had started bleeding. I panicked, even I knew that bleeding in pregnancy was bad news. However, it was only a little bit so I got dressed and went to the library to get some books out on the subject of pregnancy, after all, I'd need all the information I could get.

As it turned out none of the books I managed to get hold of had a lot to say about any problems that may be encountered. They all detailed the wonderful aspects of the miracle of childbirth but only managed to devote one paragraph to the prospect to losing a baby. They said that bleeding was common but could mean trouble if accompanied with cramping, so I was to report this to my GP. When I got home I realised that I had started to bleed more heavily. I phoned up the GP for my result and calmly mentioned what was happening. The receptionist said that I should go in that afternoon. All of a sudden I was frightened. This baby hadn't been planned and although I didn't particularly want it, I certainly didn't want to loose it. By the time I was sitting face to face with my GP I was absolutely hysterical. He booked me into the EPAU for the next morning and told me to go home and put my feet up, after all, if I was going to miscarry then there was nothing that could be done to prevent it. The next morning the cramping and bleeding were far more intense. I had my scan and was told that there was nothing there, the baby had already gone. Now I was really confused. I was officially no longer pregnant, surely this was what I had wanted, I had moved to Grimsby to start a new life without a child and this plan was now going to go ahead.

However, during the weeks that followed I had a change of opinion. All of a sudden I DESPERATELY wanted a baby, and so we decided that we would try for another, after all we were both young, fit and healthy. Having a miscarriage was common enough and didn't necessarily mean that my next pregnancy wouldn't be successful. In the mean time I got a job and by October we were trying for our second baby.

It wasn't until the following July that my period was a day late and I went into town in my lunch hour to purchase another pregnancy test. I couldn't wait this time and did the test in the toilets in the shopping precinct. I was absolutely over the moon when that magical little blue line appeared confirming that I was indeed pregnant. I immediately phoned up my GP for an appointment and that afternoon went in for the "Official" test that would get the ball rolling along the track of ultrasound scans, visit's to the midwife and eventually the birth of my child!

A couple of days of happiness and excitement passed until the day of my test result when I woke up in a lot of pain. However, there was no blood and I was still optimistic. I went into work feeling terrible and mid morning phoned the doctors for my result. I couldn't believe it when the words "inconclusive" and "need to do another" were being said to me. I was told to go in after work and do another specimen for them. After I put the phone down I went to the toilet and again discovered that I had started bleeding. I didn't bother doing another test until four days later, I knew that this time it was over before it had even begun and this was confirmed when the result came back negative a week later. The most likely explanation for this is that it was a "chemical pregnancy", it didn't implant properly and therefore wasn't viable. This is probably quite common, many women will never be aware that they were pregnant and will just assume that their period was late. It's only down to the sensitivity of modern day home pregnancy tests that I knew what was going on.

Although this pregnancy only lasted a few days, in my mind my child already had a name, a personality, had been through school, university, was married and had children of his own. By now I was reasonably depressed. I was under a lot of stress at work and decided that this could hinder my chances of successfully getting pregnant again. So I handed in my notice and lined up a nice, stress free, part time job. I was prepared for my next pregnancy to take a while, after all, the last one had taken nine months, so imagine my surprise when just two weeks after I had started my new job another home pregnancy test confirmed that I was pregnant. Again, off to the doctors for a test and another lecture about "trying not to worry" and that "if you're going to loose it, you can't prevent it". For two weeks I thought of nothing else. I became superstitious and decided that if I sang all of the words to Wilson Phillips' "Hold on" every day then everything would turn out fine.

Everything WAS fine until at six weeks I woke up and saw that I had started to bleed again. In a panic I phoned up to make an appointment with my doctor. Fortunately I was able to get one that morning and after yet another "Nothing you can do" lecture, my third one to date (and they don't become anymore helpful the more you hear them) I was given the number for the EPAU and told to phone them if I wanted a scan. That afternoon I was again in a lot of pain and the bleeding had become quite bad so I phoned them up and went straight in. Three hours later I was looking at an ultrasound picture of my baby. OK so it didn't look like a baby, it looked like a blob with a little fluttering in the middle but to me this was the most amazing thing I had ever seen in my life.

I was told that the bleeding wasn't coming from the baby and that everything looked fine. I was to go home and rest, if the pain or bleeding got worse then I was to call them again. That night as I lay still I again planned out my babies future, what it would look like when it was born and what sort of mum I was going to be. The next morning when I woke up I knew that it was all over. I begged the nurses for another scan and in the afternoon I was faced with a motionless ultrasound screen. I was offered a D&C but the prospect of the general anaesthetic terrified me so I turned it down. I went home to ponder yet another failed pregnancy. This wasn't to be the end of it though. A week later I was still bleeding heavily and it was decided that I would have a D&C after all. It was a decision I wish I'd made sooner as although the waiting was an ordeal it was a relief knowing that when I came round, I could get on with life again.

I now qualified to see a consultant. I had some blood tests done and had an appointment for the beginning of January 2000. In the mean time I decided to get as much information as I could. The library hadn't been much help so instead I spent hours on the Internet. I joined an Internet support group and although the majority of the women in it were American and had a completely different set up where their health care was concerned it was still a place I could go to and get some understanding from people who weren't embarrassed to talk to me.

When I had my appointment with the consultant I was told that everything was normal apart from a slight problem with my thyroid, I was given the go ahead to try again for the fourth time. This was just as well as a week later yet another home pregnancy test confirmed that I was pregnant again. I was far from relaxed. It was a Saturday and I was in the process of changing GP. I wouldn't be able to even make an appointment until Monday and they had no idea of my history.

On Monday morning I phoned up and was told that I couldn't see that doctor until Wednesday. Somehow I managed to keep it together long enough to explain my situation and they agreed that I could see him immediately. I was fine on my way to the surgery and even in the waiting room. It wasn't until I was again face to face with my new GP that I started sobbing. I managed to tell him my story and begged for a blood test this time, I knew that a urine one would come back negative at this early stage and I was desperate for something different to happen with this pregnancy. The nurse at the surgery phoned up my consultant and it was arranged for me to have a blood test that afternoon and an appointment with the consultant the next day. This calmed me down a bit and when I was at my appointment the next day with confirmation of my pregnancy I begged to be put onto progesterone. I had read somewhere that this could help to keep the pregnancy and was determined to try anything, if I had read that running twenty miles a day would help I would have done it.

I had a scan booked for six weeks and when the day arrived I was apprehensive yet reasonably confident. I had had no cramping and no bleeding, surely this time everything would be perfect. The scan revealed a pregnancy sac but no heartbeat yet. Still, I could live with this. I knew that not all pregnancies showed a heartbeat at six weeks. I was rebooked for a week later. A week went by still with no cramping or bleeding, half of me was looking forward to seeing that fluttering on the screen again but at the back of my mind though there was still a nagging doubt that this could all still fall apart for me at any time. I had read about "Blighted Ovum's" where there is no baby, just a pregnancy, and the pessimistic side of me thought that maybe my pregnancy was heading in this direction. So on the morning of the scan I packed an overnight bag to take with me, again the superstitious side of me thinking that if I got too confident then I was tempting fate. This didn't stop the worst from happening. The screen showed no development and my HCG levels were too low to be supporting a viable pregnancy. I decided there and then to have another D&C. As I came round from the anaesthetic that afternoon my consultant asked me if I'd like to be referred to the recurrent miscarriage clinic at the Jessop hospital in Sheffield.

So six months, several visits to Sheffield and numerous tests later, I was diagnosed with Antiphospholipid Syndrome and Poly Cystic Ovary Syndrome. I'd had an Endometrial Biopsy, a Hysterosalpinogram, more scans and blood tests. It was the blood tests that showed the Antiphospholipid syndrome. Interestingly, I had already tested negative for this, it seems that the levels in the blood fluctuate and that for a positive result they must be high for two consecutive blood tests. The PCOS was confirmed by scan. It also transpired that the month they had monitored my hormone levels prior to the biopsy, I hadn't ovulated, another indication of PCOS.

In August 2000 we were given the go ahead to try again. It's now February and the last six months have been incredibly difficult for me. I spent that later half of the year 2000 very depressed, I did some serious comfort eating and managed to put a stone on before Christmas. However, the new year was a chance for me to look to the future. I know that diet and exercise are very helpful for PCOS sufferers, so I have been trying my best to be healthy in the hope that it will increase my chances of conceiving. For the last two and a half years I have lived and breathed the whole cycle of pregnancy and miscarriage. This certainly is a world away from the life I had planned for us when I first moved to Grimsby.

Not a day goes by when I don't think about it, it hurts so much when I read about yet another celebrity who is pregnant or who has given birth. It's not that I begrudge them their happiness, far from it. I can now appreciate just what a miracle having a baby is and hope that one day I am fortunate enough to share this miraculous experience with them.

 

 

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